More details later....I have a migraine..
Saturday, September 29, 2012
I blogged too soon...Annie had an amazing day yesterday-perfect actually! but by 9 she got a fever and started to feel badly. She still had it this morning and she's feeling really badly, so they want to keep us overnight again. I'm not disappointed because I'd be nervous to go home now. Prayers appreciated! :)
This will be the quickest we've been discharged to date. I usually fight being discharged so early, but she had such a good day yesterday, I can't really fight! lol Today she's feeling less stellar, but it's because she has a fever, (common after her surgery). She's well enough to go home, but I would like her to feel better! :)
In the last 6 months, Annie has returned to this hospital 3 times! Every 3 months we've come back: March, June, and now September. We're both happy to break out of this joint! ;) Third times a charm? :)
Friday, September 28, 2012
Surgery went well today! They accomplished what they wanted to, but there was some bleeding so they're watching her well. So far she's doing perfectly so I think she's fine! :) Thanks for praying!
This was her 5th surgery so you'd think it would get easier. The day before surgery anxiety is less, but handing her over for surgery gets harder every time.
My sweet Annie deserves a trip to Disney! 6 hospitalizations and 5 brain surgeries in the amost 2 years since she joined our family...over 7 weeks total spent in the hospital over the last 2 years, at least 4 months total in her lifetime-at least. She's a rock star! Poor Angel!
She was given a clown nose by some volunteers-she rocks it. ;)
Thursday, September 27, 2012
6th hospitalization, 5th surgery...since she's been with us, (at least 2 other surgeries and over 2 months in the hospital before she came to us).
Tomorrow they will be going in to cut down the membrane wall that is in between the two larger cysts, (no new shunts). The goal is to make the least amount of cysts using the least amount of shunts.
If she were older they would do a full crainiotomy, (very invasive) :/Prayers appreciated!
Wednesday, September 26, 2012
The cyst they did surgery for is decreasing BUT there is a new cyst that had developed/increased. I hate that something is wrong, but it is such a relief that I'm not crazy and Mommy knows best! We've been admitted and will have a MRI tomorrow to see if surgery is necessary. Prayers appreciated!
Tuesday, September 25, 2012
Annie splashed pediasure on my face and I got onto for it.Normally she'll just cry. She started crying and said, "I spilled on Mommy's face!" I told her to say she was sorry, and very pathetically she said through tears, "I'm so sorry Mommy!" Normally she'll refuse to say she's sorry and just keep crying, but buy yesterday. :) Then she reached up and said, "I wipe Mommy's face!" and then she did. :)
Dr appointment tomorrow-.please pray its clear wears going on with her. :)
Monday, September 24, 2012
In June Annie was sleeping all day long, so we took her to the Dr assuming it was her head.
Dr said the sleeping had nothing to do with her head, but wanted to operate anyway because the cyst was large.
After surgery, she returned to a normal sleep schedule. Def makes you think it had to be her head, right?!
Last week, (or maybe the week before, I can't remember), she started sleeping all day again. (so she had a good 3 months of a normal, consistent 10-12 hour sleep schedule up to this point).
I have been waking her up, but today I let her sleep as a test.
She went to sleep at 8pm and its almost 1pm and she's still out. That's 17 hours y'all!
Thankfully we have a pre scheduled Dr appointment on Wednesday. Prayers appreciated!
Here's a sweet pic of her just waking up on Saturday. :)
Saturday, September 22, 2012
Friday, September 21, 2012
Tuesday, September 18, 2012
Ok, call me a drama queen-whatever. Last week or so, Annie deleted thousands of pictures off my phone! I tried, but I can't get them back! It makes me physically ill to think about it! Thankfully I posted a few of those pics on my blog over the months, so I have a few of them. Yes only a few out of thousands- sick sick sick.
But I'm still thankful I have them! To avoid the heartache again, I'm posting every new pic that I'd be sad to lose...just in case!
And yes, if you're wondering, Annie has lost phone privileges.
Monday, September 17, 2012
For the first time in the almost 2 years since Annie has been with us, Annie acted like a normal 2 year old. And that's not a good thing.
In 2 years Annie has never cried in a store-until today. Every store we went to she cried. I was one of those annoying moms with a crying baby in tow.
I assume its just her teeth, but the more she cried, the more I worried about her head. :/ Prayers appreciated!
Mommy had a rough day even without Annie acting out, so we're in bed for a well deserved nap!
Notice the drool dried to Annie's cheek-those darn teeth! lol Nothing an Icee won't fix!